Finally a diagnosis
May. 24th, 2025 07:52 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png){kind=small}
lunabee341. Dylan has been diagnosed with lupus and given medication. When we got done with the appointment, I sat in the car and cried. It's been so long with no one helping us that I had started to despair that it would ever happen. I'm scared, of course; I don't want my child to have lupus. But this means they can now take medicine to make them feel better, and they can get accommodations at school if they need to because they have a formal diagnosis.
I am also incandescently angry at the first rheumatologist we saw. Dylan's labs are essentially THE SAME as when we saw that doc; she just didn't think Dylan was SICK ENOUGH to do anything about. They could have been getting help all this time.
In the same vein, I've got a routine appointment with my PCP later this summer; I'm going to have her run the same labs she did on Dylan that led to the referral, and if my labs are at similar levels, I'm going to get a referral to the same rheumatologist. I have always firmly believed that Dylan and I have the same issue, just that they started on the path much earlier and much more severely. I couldn't get that awful rheumatologist to take me seriously, but clearly this one will.
I haven't said anything to my parents yet. I guess I will next time we talk, but I don't want to initiate contact with them. I know mom's going to be hurt and sad that I didn't immediately tell her, but I don't want to talk to them.
2. ( spoilers for all of Dragon Prince )
All in all, deeply enjoyable and highly recommended.
I am also incandescently angry at the first rheumatologist we saw. Dylan's labs are essentially THE SAME as when we saw that doc; she just didn't think Dylan was SICK ENOUGH to do anything about. They could have been getting help all this time.
In the same vein, I've got a routine appointment with my PCP later this summer; I'm going to have her run the same labs she did on Dylan that led to the referral, and if my labs are at similar levels, I'm going to get a referral to the same rheumatologist. I have always firmly believed that Dylan and I have the same issue, just that they started on the path much earlier and much more severely. I couldn't get that awful rheumatologist to take me seriously, but clearly this one will.
I haven't said anything to my parents yet. I guess I will next time we talk, but I don't want to initiate contact with them. I know mom's going to be hurt and sad that I didn't immediately tell her, but I don't want to talk to them.
2. ( spoilers for all of Dragon Prince )
All in all, deeply enjoyable and highly recommended.
Me me me
May. 20th, 2025 06:01 pmelisiI posted Chapter 3 of my Crystal fic: Show and Tell
Just under 5k
Realised that it's been a month since chapter 2. /o\ Anyway, I'm having fun. Plz head over to AO3 & leave a kudos or a comment if you like it? <3
~
In other news then we started watching 'Only Murders in the Building' (since we got Disney+ anyway). This show is really rather good. Not in a fannish sense, just in a wildly entertaining and funny and well-written way. Recommended.
Just under 5k
Realised that it's been a month since chapter 2. /o\ Anyway, I'm having fun. Plz head over to AO3 & leave a kudos or a comment if you like it? <3
~
In other news then we started watching 'Only Murders in the Building' (since we got Disney+ anyway). This show is really rather good. Not in a fannish sense, just in a wildly entertaining and funny and well-written way. Recommended.
Happy 19th anniversary to us
May. 19th, 2025 10:26 pmclauderainsrm posting in ![[community profile]](https://www.dreamwidth.org/img/silk/identity/community.png){kind=small}
therealljidol 19 years ago Idol came out of my head and into the world!
I'm waiting for the graphics for The Wheel of Chaos, but they should be here by the end of the month, which means we are a couple weeks away from having some fun. Or at least "fun"... or at least one of us will be having one of those things! ;)
I'm waiting for the graphics for The Wheel of Chaos, but they should be here by the end of the month, which means we are a couple weeks away from having some fun. Or at least "fun"... or at least one of us will be having one of those things! ;)
Misc
May. 17th, 2025 12:33 pmelisiFirstly, Dead Boy Detectives is now available on Amazon Prime. And you can buy the whole show!!
🥳🥳🥳🥳🥳🥳🥳🥳
~~
A very random and rather delightful story:
School evacuated as grenade brought to show-and-tell
A school was evacuated and army explosives experts called after a pupil unexpectedly produced a grenade from his pocket in a show-and-tell assembly.
(Everyone was FINE.)
~~
Apparently today's Doctor Who is excellent, which is nice. I am hiding from all spoilers.
( Spoiler only for the name of the episode - which, to be fair, is spoilery )
~~
And finally Dimash has released a new song/music video. It is very silly, and he clearly enjoys poking fun at himself and his fans.
Dimash Qudaibergen - 'TAU ISHINDE' OFFICIAL MV
(“Tau ishinde” was originally written by prominent Kazakh poet and writer Saken Seifullin — a foundational figure in Kazakh literature.)
ETA: Dimash Masterpost
🥳🥳🥳🥳🥳🥳🥳🥳
~~
A very random and rather delightful story:
School evacuated as grenade brought to show-and-tell
A school was evacuated and army explosives experts called after a pupil unexpectedly produced a grenade from his pocket in a show-and-tell assembly.
(Everyone was FINE.)
~~
Apparently today's Doctor Who is excellent, which is nice. I am hiding from all spoilers.
( Spoiler only for the name of the episode - which, to be fair, is spoilery )
~~
And finally Dimash has released a new song/music video. It is very silly, and he clearly enjoys poking fun at himself and his fans.
Dimash Qudaibergen - 'TAU ISHINDE' OFFICIAL MV
(“Tau ishinde” was originally written by prominent Kazakh poet and writer Saken Seifullin — a foundational figure in Kazakh literature.)
ETA: Dimash Masterpost
Stranger Things recs
May. 14th, 2025 10:09 amlunabee34Infernally Yours (Or, the Epic Love Story of Sir Stefan the Brave and Orcus the Demon-Lord) by xoxoLadyAz
Steddie, Max/El, Nancy/Robin, Jonathan/Argyle
Steve starts playing DnD with the kids in '85.
so this is what the volume knob's for by greatunironic
Dustin and Erica gen
This is part of a series, but you don't need to read the other installments to read this one; all you need to know is that Steve has been presumed dead since Starcourt.
So Scarlet it Was Maroon by reskaye and t1red_gay
Steddie
I haven't been reading many of the Eddie is a vampire or Eddie comes back wrong fics, but this one caught my eye. Nice and angsty and partially epistolary with Steve writing letters to an Eddie he thinks he'll never see again.
Restless Heart Syndrome by IvoryWitch
Steddie
As Eddie recovers in the hospital, the sight of Steve keeps setting off his heart monitor. LOL
Movie Night by jk_rockin
Series
Steddie
Super hot smut.
Landslide by fullofbeansandspunk
Steddie
Eddie helps Steve explore music.
Steddie, Max/El, Nancy/Robin, Jonathan/Argyle
Steve starts playing DnD with the kids in '85.
so this is what the volume knob's for by greatunironic
Dustin and Erica gen
This is part of a series, but you don't need to read the other installments to read this one; all you need to know is that Steve has been presumed dead since Starcourt.
So Scarlet it Was Maroon by reskaye and t1red_gay
Steddie
I haven't been reading many of the Eddie is a vampire or Eddie comes back wrong fics, but this one caught my eye. Nice and angsty and partially epistolary with Steve writing letters to an Eddie he thinks he'll never see again.
Restless Heart Syndrome by IvoryWitch
Steddie
As Eddie recovers in the hospital, the sight of Steve keeps setting off his heart monitor. LOL
Movie Night by jk_rockin
Series
Steddie
Super hot smut.
Landslide by fullofbeansandspunk
Steddie
Eddie helps Steve explore music.